Monday, June 19, 2023

Ketameeeeeeen Makes Me Feel Fiiiiiine...

A little over a year ago, I sat in tears, describing the depths of my anxiety and depression to my FNP. 

I felt desolate. I wasn't handling life well. My meds felt hugely ineffective. I felt wildly out of control of my life, powerless. I had no power over myself or my life. Life was just happening to me. Around me. My brain, my body, my soul--every part of my being was in shut down mode.

I wanted a magic wand. Instead, my FNP suggested trying ketamine treatments.

If you've never experienced depression, it is this huge gaping hole. It just swallows you completely. Depression is this rogue wave and it knocks you off your feet, not allowing you to catch your breath or get back up before it knocks you over again. It steals, robs and violates--and not just you, but everyone you love, and everyone who loves you. 

This past winter, I admitted to my FNP, Shawn and my best friends that I should probably be hospitalized. I simultaneously acknowledged hospitalization most likely would not solve anything, could possibly even make things worse, as well as cause it's own problems. If anything, it might possibly have given me a chance to slow my world down for a minute or two, get my bearings and take a bit of a break. Possibly. It could also have intensified my sensory overwhelm, as well as my feelings of not being in control of my own life.

I've battled depression and anxiety for a little over 30 years. In addition, I've battled PPD, PTSD, and the oh-so-fun, roller coaster-y yearly SAD. I've cut and burned myself, and I've lost count of my suicide attempts. I was hospitalized once in college. None of this has been fair to my children and husband. They deserve a better version of me.

The majority of these three and a half decades, my mental illness has been considered intractable, untreatable, unresponsive to medication and various treatments. I've been on every single antidepressant on the market. I wish I were exaggerating. I'm currently on two antidepressants and one anti-anxiety medication; one of my anti-seizure meds is supposed to have a helpful side effect concerning mood imbalances. They have little effect, but they do keep me alive. Still, depression and anxiety often rule my life. Still, they often rule our family life. Still, nothing about it becomes more familiar, nothing about it becomes easier, nothing about it becomes normal.  Day to day, month to month, season to season, it can--and often does--change on a whim. I am a slave to these chemical imbalances in my brain. 

I have, unfortunately, passed these chemical imbalances on to my children. I hate it for them.

Shawn has watched me suffer and struggling, suffering and struggling right along with me, trying to keep me going. I hate it for him.

Two and a half weeks ago, I had my first ketamine treatment. 

Over the past year, my FNP has acquired every single piece of specialty equipment, she's attended multiple trainings, and provided several in-services for her staff. We've hit roadblocks, we've prayed, we've wondered if we were doing the right thing.

And then, it all just came together, all at once.

This first treatment--this first step towards a better me we all deserve--was the fruition of all of that effort and preparation. 

Not knowing what to expect, I took two books along with me; my FNP laughed as she put them aside, telling me I would not need those. I also had my pillow. Babysat by one of my FNP's nurses and hooked up to various monitors, I experienced the most peaceful forty minutes I've had in four and half years, the most pain free forty minutes I've had in countless years. It was absolutely incredible. It was a day worth celebrating. Even though we are only using the depression protocol, we are hopeful to see positive changes in my pain and seizures, as well. 

A week later, I had my second treatment. We increased the dose a little, and I did feel a little loopier. I slurred my words a little trying to speak to my FNP halfway through the session. They had a good laugh when they realized I switched up and was responding with ASL--can't slur my hands! Once the treatment ends, I'm up and ready to go within about ten minutes. I'm somewhat cognizant throughout the infusion, but also somewhat unable to really engage; I can hear the traffic outside, I hear the pump beeping as it administers the medication, I hear people outside the room, I hear them asking me questions, but I'm unable to open my eyes or verbally respond. I do nap for a bit once home. Ten days after that--this past weekend--I had three treatments in a row. In two more weeks, I'll have another round of three. After that last treatment, we'll break for two months. 

Thursday's session--my body's response to it--caught me off guard. After talking with others who have experienced similar treatments, I've learned that is the most typical, expected reaction. It is also the most beneficial; it means your brain, your subconscious, is trying to work through all the stuff you've crammed in there and attempted to bury.  As one person put it, "This stuff will humble your ass real quick." I'd spent the previous night, and several days beforehand, yelling at God. My guard was down. Which begs the question, am I too guarded for this to work? I don't like being vulnerable. I don't like feeling exposed. Will this work if I can't be vulnerable? Those forty minutes on Thursday were not the pain free bliss I'd encountered my first two sessions. I cried through the entire treatment and a bit afterwards. Curled in the fetal position, I heard myself angrily yell at God, "YOU CAN'T HAVE HER TOO!" One of my dearest friends is battling cancer. She's trying to be realistic and prepare all of us, but I'm in complete denial. No. I am not ready to face any outcome besides complete healing. I cannot lose her too. Her family cannot lose her. The world as a whole--it still needs her. God cannot have her, not now, not for a very long time. I not only put my wall back up Friday and Saturday, I reinforced it.

Weirdly, I'm the pioneer here. We've only sort-of joked that maybe it would've been wiser for her to choose a different patient... If (when) this goes well for me, my FNP will be able to offer the same opportunity to others like me. Others like me with families and friends who need more tomorrows with them. I want it to work for other people, I want it to be an option for them. I have a fear of letting my FNP down, of this not working; then what's the point of all the money she's sunk into this project? I don't have to be the one leading the charge, yelling, "WE'RE STILL HERE," but I do want to be the one in the back cheering that charge on. 

I'm still here.

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